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July: Sarah Caplan, 7th grader at The Shipley School, Bryn Mawr, PA

Sarah recently celebrated her Bat Mitzvah and wanted to mark this occasion by giving back.  She is a smart 13 year old who likes to play squash, hang with friends and paint. But Sarah also knows how lucky she is to have her health.

For her mitzvah project she chose to help out a charity that is very close to her heart and we are lucky enough to be that charity! Sarah is a close family friend to Chris McElwee, our Founder. Her mitzvah project was very important to her and she is inspired by the patients and families who find the strength and courage to fight back against cancer. Sarah is very grateful to have a life where she can donate and get involved. In lieu of gifts, she asked her friends and family to donate to Michael’s Way. We received an outstanding amount of donations which will go to help many families. 

Sarah also helped organize a carnival for the Oncology patients at St. Christopher’s Hospital for Children. On Wednesday, June 7th we provided food, entertainment and gifts for the kids. This is a great distraction from their normal routine at the clinic. In Sarah’s words, “being generous is the most important characteristic to have. Everyone comes on hard times at one point in their lives and if we don’t help each other, no one will be there to help us”.

Information provided by her mother, Ellen Caplan.

 

A Special Weekend for a Special Girl

After our golf outing ended in the Fall, a participant said that he won a trip in the auction and he asked if Michael’s Way would identify a family who would be able to enjoy it. We just love when this happens because it’s as close to being Santa Claus as we’re going to get!

So, we spoke with social workers to connect us to an Oncology family that would enjoy this weekend getaway. The trip included a two night stay at the Mohegan Sun, two dinner certificates and four tickets to the June 11th NASCAR race at Pocono Raceway.

Savannah is a 13 year old from Lancaster and relatively new to Pennsylvania, as her family recently moved from Kansas City. Savannah was diagnosed with Acute Lymphocytic Leukemia (ALL) and is being treated at CHOP. She recently had a birthday and was planning on celebrating at a Carnival near home but she got sick. So, this was the perfect opportunity for her and her family to celebrate with the weekend away.

We heard from her mother, Stephanie, after their trip. She told us that Savannah had a blast! Her favorite part of the resort was watching the horses run around the track and eating at Johnny Rockets. They also went swimming and walked around town. Savannah bought a new stuffed penguin that she could bring to the hospital. At Pocono Raceway, Savannah and her sister got to eat plenty of ice cream and watch Danica Patrick race.

This was the first family trip since Savannah was diagnosed over 9 months ago. We are grateful to those very special people that give back to Michael’s Way and make events like this happen. Thank you to the W Family for treating Savannah and her family to a well deserved trip!

 

 

 

June: Charlize Nunez Rivera, 6th grader at Eugenio Maria de Hostos Charter School, Philadelphia, PA

Charlize is a pre-teen who loves animals, especially dogs. She can look at a picture and tell you the breed. She loves watching videos on youtube and like most girls, she loves to shop. Her favorite stores are Old Navy and Target. Charlize is lucky enough to have three brothers and one baby sister who she adores.

In March of 2016, Charlize was diagnosed with Osteosarcoma. She has cancer in her leg and arm but you would never know it! She is a brave girl with a positive attitude. St. Christopher’s Hospital for Children diagnosed and treats her cancer. Charlize dresses to impress when she goes to clinic. Cancer will not get in the way of her fashion. Her family means everything to her and they are going to help her celebrate her 12th birthday this month!

Information provided by her mother, Angelica Rivera.

 

Panthers Play A Round and Then Some

We absolutely could not have asked for better weather to kick off the 2nd Annual Michael’s Way Charlotte Golf Tournament. Last Monday, May 8th, we gathered at the pristine Charlotte Country Club to play a round of golf, eat dinner, raise money for the kids and — oh yeah, meet some Carolina Panthers!

Thanks in large part to safety Kurt Coleman, we had 7 players participate in the daylong fundraiser, including hanging out after golf to meet some very excited children. Families from Levine Children’s Hospital came to the Club for dinner, yard games, and to get photos and autographs with their favorite football players. The Panthers could not have been more kind and attentive, spending the evening tossing the football around, giving out hugs, sharing fist-bumps, and creating lasting memories for the kids.

On top of that, we were able to raise funds and further explain our mission to a generous group of returning friends and new faces. After dinner, Juliet Galton, a social worker at Levine, got up to give a speech about the realities these families face day-to-day, and she knocked it out of the park — or rather, sank a hole-in-one! She said, “The word cancer is the scariest word you will ever have to hear when it pertains to a member of your family. Especially your son or your daughter. I’ve heard it described as ‘an assault on our family’.” There was not a dry eye on the patio. We are so grateful to hear directly from those who work with these children on a daily basis and have them share their knowledge and compassion with us.

Then, we were honored and astounded as Kurt Coleman got up on the microphone to kickstart a round of donations — and he did it all by speaking directly from the heart. He explained to our guests what ‘Fund the Mission’ is: a special part of the live auction that allows participants to directly donate to the families’ most pressing needs. Kurt himself started off with a personal donation of $1,000 to Michael’s Way — and then pledged to donate another $1,000 for EACH interception he makes this season! We were blown away both by his generosity and his desire to make these children a focus the whole season long!

We are beyond grateful to all the Panthers that took time out of their very busy schedules to join us and help create a memorable day for all of the kids and families in attendance. Thank you to Brenton Bersin, Kurt Coleman, Colin Jones, Andy Lee, David Mayo, Jared Norris & Zack Sanchez!

This year’s event raised over $70,000 for Michael’s Way! We could not have done this without the support of our gracious sponsors, our volunteers, and the terrific staff at Charlotte Country Club. We have been given so much by so many generous people in a multitude of ways, and we appreciate all that you do! Thank you for supporting our mission, and remember to keep an eye on our awesome Panther friends this season!

 

 

May: Laynee Shiann, Kindergartner at WCK Walls School, Pitman, NJ

Creative, rambunctious and social butterfly are three ways to describe our Spotlight. Laynee loves to try new things, make friends and dance. She enjoys watching The Phillies with her family and playing Frisbee outside.

Miss Laynee has been considered cancer free for about 3 months now. But, she has battled Embryonic Vaginal Rhabdomyosarcoma for most of her life. At the young age of 22 months old, Laynee started to have blood appear in her diaper. After three separate trips to the local hospital with no answers, she visited St. Christopher’s where they spotted her tumor through an ultrasound. She went through 43 weeks of chemotherapy and surgery. Unfortunately, that was not the end of Laynee’s fight. The cancer came back in November of 2015 (age 4) and this time she went through 54 weeks of chemotherapy, radiation and another surgery. The road to remission has not been easy but Laynee knows that she is able to do anything she sets her mind to! 

You can show your support for Laynee HERE.

Information provided by her mother, Heather Nelson.

April: Ka’lon White, 6 yrs old from Matthews, NC

This lovable little boy has a spunky personality and is not afraid to speak his mind. He loves to play with his toys like monster trucks, legos and anything Star Wars. These are great distractions while spending time at Levine Children’s Hospital located in Charlotte, NC.

Just a few months ago, Ka’lon’s mother noticed lumps on his neck. Their pediatrician referred them to an ENT who prescribed blood work and a CT scan. The tests showed his white blood cells count to be over 600,000 and he was immediately admitted. “KK” is diagnosed with T-cell leukemia and undergoing a chemotherapy regiment that requires him to take chemo by IV through a port in his chest, intrathecally into his spinal fluid via lumbar punctures, by injections as well as orally. His mother hopes that he has a fulfilled life and all of his dreams come true.

Information provided by his mother, Jessica Romacho.

Building Hope for Kids Recipient: Syrianna

Building Hope for Kids Recipient: Syrianna

Age: 9 months
Age at Diagnosis: 3 months
Type of Cancer: Optic Glioma
We were lucky enough to partner with Flyers Charities for our 6th year to remodel the home of St. Christopher’s patient, Syrianna. This renovation will provide a safe and comfortable environment for Syrianna to rest and grow as she fights her battle with cancer. We are grateful to her and her family for welcoming us with open arms.

March: Stephanie Fooks-Parker, Blood and Marrow Transplant Program (BMT) Social Worker at Children’s Hospital of Philadelphia

Stephanie, a Philly native, is a loving wife of 25 years to her husband, M. Bart, and also proud mama to her 16 year old son, Harrison. She enjoys traveling with her family to Florida and most recently Quebec City. When she is not working, she loves to read and bike ride. Stephanie is a compassionate, empathetic and inclusive person who is quite the problem solver. These are wonderful characteristics to have as a social worker.

For 25 years, Stephanie has continued to be dedicated to the field of oncology social work. It is her job to provide supportive counseling, education and resources to families and children, specifically those undergoing bone marrow/stem cell transplant. Stephanie loves meeting and connecting with each family. Her job can be tough so it has taught her to not sweat the small stuff and be grateful for what you have.

“A hundred years from now it will not matter what my bank account was, the sort of house I lived in, or the kind of car I drove…but the world may be different because I was important in the life of a child” –Forest E. Witcraft

 

February: Syrianna Negron, 9 month old, Philadelphia, PA

Baby Syrianna is always happy, playful and smiling. She is a beautiful little girl who lights up the room when she dances to music and tries to walk. Syrianna continues to smile even though at the young age of three months old, she was diagnosed with Optic Glioma.

When Syrianna was just one month old, her mother noticed that her eyes were constantly shaking. After taking her to the pediatrician, they were sent to a Neurologist at St. Christopher’s Hospital for Children. They ordered all kinds of tests on Syrianna but it was the MRI that showed a tumor in the back of her eyes. In July of 2016, she was diagnosed with Optic Glioma. She began treatment right away which consists of weekly chemotherapy and MRI’s every three months. Her next MRI is on February 8th and we are hopeful that the tumor continues to shrink. Her mother wishes for her baby to grow physically, mentally and emotionally. Syrianna is so brave and an inspiration to us all!

Information provided by her mother, Michelle Placencia.

January: Brianna Gansert, Junior at Mainland High School, Linwood, NJ

In September of 2014, Brianna was a 14 year old freshman in high school just four days into the new school year when she was diagnosed with Bilineage Leukemia. For the next year she spent more time in the hospital than out because of reactions she was having to the treatment. She suffered a lung infection that had her on antibiotics for 9 months, pericardial effusion, high bilirubin, elevated kidney function, a very bad case of mucositis, neuropathy, she was fed through an NG tube for a year, she was hospitalized for a nutritional crisis, she had a septic hip and avascular necrosis which eventually led to a hip replacement, ankle surgery and a knee replacement.

Through all of it Brianna has been able to maintain a 3.7 GPA in school and when she returned to school as a sophomore she was nominated by her teachers as Student of the Month. She will be graduating with her class in 2018. Brianna is also very involved in school clubs such as the Key Club, Interact Club, Hoofprints (the school newspaper), and she created and is president of Club Cure- a club that raises awareness about cancer. And if she wasn’t busy enough, because she will never be able to play sports again, Brianna has taken on the role of manager in Field Hockey. Brianna is also heavily involved in the Leukemia & Lymphoma Society of NJ and has been named their Honored Hero in 2014, Skipper of the Year in 2015, Honored Hero (again) in 2016 and she is currently campaigning to be Student of the Year in 2017 with the goal to raise $50K for cancer research.

Having cancer has changed her life and taught her to expect the unexpected and live in the moment. She says she hopes to see the day that cancer is cured!

Information provided by her mother, Jennifer Gansert.